Shantee Anaquod’s aunt in Alberta made special cookies for her to hand out to the staff at Vancouver General Hospital. Miranda Gathercole Langley Times

VIDEO: AHUS patient Shantee Anaquod is home for Christmas

Less than a month after receiving first dose of $750K drug, 23 year old healthy enough to go home

It’s a Christmas present Shantee Anaquod didn’t think she’d get.

Two months after being diagnosed with the rare blood disease Atypical Hemolytic Uremic Syndrome (aHUS), Shantee, 23, will get to spend the holidays at home with her family.

The UBC student has been in hospital since Oct. 15, when flu-like symptoms escalated into a life-threatening condition. The treatment used for the disease — Soliris — costs $750,000 per year to administer, and was not covered by extended medical or the government.

READ MORE: Langley mom pleads for help in securing $750,000 life-saving drug for daughter

READ MORE: Government approves funding of $750,000 drug for B.C. woman

But after a storm of media attention, the government agreed to finance the drug, and less than a month after her first dose, Shantee is well enough to return home.

“I was really excited — super excited — because I was just waiting to know when I was going to go home,” Shantee told the Langley Times during a Soliris appointment at Vancouver General Hospital on Tuesday.

“I have more energy, and I feel like I’m getting stronger, slowly, so that’s nice. I don’t have as much pain in my body.”

Shantee was officially discharged from the hospital in the afternoon on Dec. 14, and spent the first two nights at her mom’s house. Last weekend, she was able to return to her rental in Vancouver, where she lives with three roommates.

“It was pretty great, I got a lot of sleep and got to do what I want,” Shantee said of her first night home. “It’s a little harder managing everything without a nurse … but my boyfriend helps me out quite a bit, though. He brings me food and makes sure that I can get up the stairs.”

Equally as excited about Shantee’s recovery is her family. Shantee’s brother, Jonathan, 9, made it his birthday and Christmas wish to have his sister home for the holidays.

“Just her being home, the idea of not having to celebrate Christmas in the hospital or bring her out on a day pass is phenomenal,” said her mother, Jennifer.

“And she’s been looking at turkey recipes for the last three weeks, she’s determined to cook the turkey this year.

“It’s been pretty great watching her get a little bit better every week.”

No one, including Shantee, knew that she would be discharged from hospital so soon. She still has to take a significant amount of medication every day, and undergo dialysis three to four times per week. Her Soliris dosage — which takes about an hour to administer — will now be reduced from once a week to every second week.

She also lost 25 pounds in the last two months, and has to work on gaining back her weight and strength.

“They had told us (she would be discharged) Wednesday (Dec. 13), and then Wednesday came and they said, ‘No you can’t go. Your breathing is not good enough yet, maybe we’ll look at Friday or Saturday,’” Jennifer told the Langley Times last week.

“And then she called me yesterday (Dec. 14) — I was at my staff luncheon — and said, ‘I’m going. They’re discharging me, I’m going home.’

“I was like, ‘What?’ So yeah, we had no idea.”

To make the holidays even better, Jennifer has her own homecoming to celebrate.

As she coped with Shantee’s medical battle, Jennifer also had to deal with another emergency at her house in Langley. Shortly before Shantee became ill, her neighbour’s hot water tank exploded and flooded her home. Jennifer and Jonathan spent the last couple of months in a furnished apartment in Langley City provided by her insurance.

Just a couple of weeks ago, they finally moved into a new, permanent home at a co-op in Surrey.

“I don’t know how it happened. Usually the waiting list is years, but for whatever reason, they called and we got in. So that was really well timed,” Jennifer said.

READ MORE: Langley teen seeks funding for $750,000 drug Soliris

Now, the Anaquod family is paying it forward by helping others with medical struggles. They are using what they learned through the process of obtaining Soliris to advocate for six-year-old Landen Alexa from Sooke, who is in need of a $19,000-per-month drug to treat Systemic Juvinile Idiopathic Arthrits.

Charity Cassie+Friends has been campaigning on behalf of Landen, and it just so happens that the same charity helped out Jonathan through treatments for his rare disorder, Behcet’s disease.

READ MORE: Six-year-old boy needs $19,000 a month to treat rare form of arthritis

“How things work behind the scenes was really surprising. And knowing there’s so much red tape and so many barriers to access medications and health care, for not just Shantee, but for so many people out there. I think that’s really, it was shocking to me,” Jennifer said.

“There’s been quite a few people reaching out already, so I try to connect with everybody that I can. I wish I had a magic answer.”



miranda@langleytimes.com

Like us on Facebook and follow us on Twitter

Get local stories you won't find anywhere else right to your inbox.
Sign up here

 

Shantee Anaquod with her brother, Jonathan, and mother, Jennifer, at Vancouver General Hospital on Dec. 19. Miranda Gathercole Langley Times

Shantee Anaquod receives a Soliris dosage at Vancouver General Hospital on Dec. 19. Miranda Gathercole Langley Times

Shantee Anaquod pictured with her younger brother, Jonathan, before becoming sick. After two months of being bed ridden in a hospital, Anaquod gets to spend Christmas at home with her family. Submitted photo

Shantee and her brother, Jonathan, before she became ill. Submitted photo

Shantee Anaquod spent two months in hospital. Submitted photo

Just Posted

ELECTION: Libertarian Alex Joehl to run in Langley East

Second provincial run by Murrayville resident

Langley Township’s Adastra Lab breaks local cannabis mold with extraction development

CEO Andrew Hale said changing market is leading to larger demand for distillate products

BC Green Party announces candidate for Abbotsford South

Former provincial and municipal candidate Aird Flavelle seeks election

CRIME STOPPERS: ‘Most wanted’ for the week of Sept. 27

Crime Stoppers’ weekly list based on information provided by police investigators

LETTER: Langley City resident on bandwagon over 208th Street traffic problems

Another resident is voicing an opinion about traffic in the area of 208th Street and 48th Avenue

105 new COVID-19 cases, 1 death as health officials urge B.C. to remember safety protocols

There are currently 1268 active cases, with 3,337 people under public health monitoring

U.S. Presidential Debate Takeaways: An acrid tone from the opening minute

Here are key takeaways from the first of three scheduled presidential debates before Election Day on Nov. 3

Another death as COVID-19 outbreak at Delta Hospital climbs to 18 cases

Total of 12 patients and six staff in one unit have tested positive for COVID-19: Fraser Health

Is it time to start thinking about greener ways to package cannabis?

Packaging suppliers are still figuring eco-friendly and affordable packaging options that fit the mandates of Cannabis Regulations

Join Black Press Media and Do Some Good

Pay it Forward program supports local businesses in their community giving

B.C. nurses report rise in depression, anxiety, exhaustion due to pandemic

A new UBC study looks into how the COVID-19 response has impacted frontline nurses

National child-care plan could help Canada rebound from COVID-induced economic crisis: prof

A $2 billion investment this year could help parents during second wave of pandemic

Search suspended for Indigenous elder last seen mushroom picking in northwest B.C.

Mushroom picker Thomas (Tommy) Dennis has been missing since Sept. 16

16 MLAs retiring from B.C. politics add up to $20M in pensions: Taxpayers Federation

Taxpayers pay $4 for every dollar MLAs contribute to their pensions

Most Read