Maureen Kennah-Hafstein is overjoyed at being able to reduce her medication for Parkinson’s Disease after undergoing long-awaited Deep Brain Stimulation surgery. (Martha Wickett/Salmon Arm Observer)

B.C. woman describes state-of-the-art Parkinson’s treatment as ‘miraculous’

After a long wait for Deep Brain Stimulation procedure, excruciating symptoms are disappearing

Despite all she’s been through with Parkinson’s Disease over the past 12 years, joy and gratitude radiate from Maureen Kennah-Hafstein.

On Sept. 17, the Salmon Arm resident and former Sicamous teacher underwent long-awaited Deep Brain Stimulation (DBS) surgery in Vancouver, which involved the placement of two electrodes in her brain. If you feel the top of her head, you can feel two small bumps, which she laughingly calls her antlers.

She has a little square antenna that she can place on her skin next to a pacemaker device that was attached just under the skin of her abdomen during surgery. The antenna has a short cord which connects it to a hand-held stimulator.

When she needs to increase the brain stimulation in order to reduce the medication she has to take, she just presses a button, much like you might increase the volume on your cell phone. What she does is checked by a team of nurses during her regular appointments in Vancouver.

The transition has been full of highs and lows, both physical and emotional. The only side effects at this point are slightly slurred speech and some drooling.

Over the next few weeks, the process of adjusting the stimulator and her medication continues, with the goal of leaving her on as little medication as possible. Already her previous allotment of 36 pills per day has been reduced to six.

The night before the interview she was unable to sleep because of restless leg syndrome. She used the stimulator to get rid of the tremors.

READ MORE: Shuswap woman with Parkinson’s receives long-awaited date for surgery

Although Kennah-Hafstein describes the actual surgery as “the hardest thing I’ve had to endure in my whole life,” she finds the whole DBS treatment nothing short of miraculous.

“Sitting across from you, I’m not going into these crazy body movements… I have a calm body inside which I haven’t really had for 12 years. People don’t realize what you see on the outside (all the movement that comes with the Parkinson’s medication) is amplified on the inside.”

Her overriding focus remains gratitude and joy.

“You realize you could go down the dark path or the light path. I chose the light path because there’s so much more you can get from that. Joy and gratitude is a lot more enjoyable and satisfying than doom and gloom.”

She repeats her favourite expression, which she admits to both hating and loving. It sounds really bad, she says, but is actually a sign post.

“It’s never so bad it couldn’t be worse” is the expression. She thinks with any trial in life, people have to go down the dark side to appreciate there is another way to look at it.

READ MORE: Salmon Arm woman hopeful after undergoing surgery for Parkinson’s

“I chose to look at it as a lesson I have something to gain from. So now I’m overflowing with gratitude – I can’t describe to you how much gratitude.”

She says the best gift you can give to anyone is that positive energy, the light side.

“I can be a good example to my children and everybody. I’m not the only person who has endured this suffering,” she says.

“If everything was rosy all the way along, you wouldn’t learn anything. You wouldn’t learn gratitude to the depth I’ve learned it. I feel that I’ve been given the gift of understanding that.”

Shuswap MLA Greg Kyllo, whose children she taught in school, recognized the contributions of Kennah-Hafstein to improving treatment for people with Parkinson’s in the Legislature recently. She says the speech was the icing on her cake.

Once the adjustments to the stimulation and medication are complete, Kennah-Hafstein expects to have 10 years symptom-free, “but I am pushing for 20. Every bit of joy and gratitude I can get out of myself will help get me there.”


@SalmonArm
marthawickett@saobserver.net

Like us on Facebook and follow us on Twitter

Get local stories you won't find anywhere else right to your inbox.
Sign up here

Just Posted

LANGLEY PLEASE SHARE: Hope for…

Let’s show the world that Langley is a united community filled with love and hope

Human rights complaint over Langley Pride flag tossed out

Kari Simpson’s attempt to block Langley City’s flag raising has failed

Our View: Who do you hope for?

We’re asking Langley to show us it’s hopes for a brighter future

Ryan’s Regards: Ordering food? Eat local!

Just as Langley City was picking up speed, COVID-19 shut down the new found bustle it had going

Parliamentary Secretary for Gender Equity assures support for those suffering from domestic abuse

VictimLinkBC can be contacted at 1-800-563-0808 or by email at VictimLinkBC@bc211.ca

Abbotsford prison has confirmed COVID-19 case

Pacific Regional Treatment Centre is the third prison in B.C. in one week to confirm case

B.C.’s COVID-19 rent supplement starts taking applications

$300 to $500 to landlords for April, May and June if eligible

Canadian Olympian diagnosed with heart failure, possible exposure to COVID-19

Olympic soccer star Karina LeBlanc diagnosed with pleural effusion

B.C. unveils $5M for mental health supports during the COVID-19 pandemic

Will include virtual clinics and resources for British Columbians, including front-line workers

B.C. First Nations Health Authority launches virtual doctor program

Program to provide primary health care through COVID-19 pandemic

UPDATE: Canadians awake to extra COVID-19 emergency benefit money, feds clarify changes

The CRA and federal officials are working to clarify the confusion around payments

VIDEO: B.C. singer creates frontline workers tribute song

Cambree Lovesy’s song saluting those battling COVID-19 draws interest online

Statistics Canada report looks at COVID-19’s impact on violence in the family

Police across Canada reported almost 100,000 cases of intimate partner violence in 2018

Most Read